September 5, 2012


Posted in BACTERIAL, MISDIAGNOSED tagged , , , , , , , , , , , , , , , , , at 9:30 pm by PCOSLady

PCOS Lady:
Lyme Disease will manifest over years effecting parts through your body… You may experience needing several surgeries and numerous medications over time… I know a woman that has experienced both!
~ You can see some symptoms overlap other medical conditions…
~ Spirochetes are tough to kill cause they may be masked behind tissue, etc… in you…
Lyme disease is caused by spirochetal bacteria from the genus Borrelia. Because of their double-membrane envelope, Borrelia are often mistakenly described …
~ Morgellons Research …
Hidden Lyme Disease:
Many people do not know that Lyme disease (Borrelia burgdorferi, spirochete bacteria) is contagious almost in the same manner as syphilis (Treponema pallidum, another spirochete bacteria).
Since Borrelia bacteria can invade all regions of the human body, it can be found not only in the bloodstream or as cystic form (sleepers) in the connective tissue, but also in tears, sperm, urine, sputum and breast milk.
Most people test negative for Lyme’s Disease!
FACT: “KEY”… 80% of Lyme patients had high ALT and AST levels!
By Mayo Clinic staff
Lyme disease rash
The signs and symptoms of Lyme disease are variable, usually involving more than one system. The skin, joints and nervous system are affected most often. In general, Lyme disease can cause:
Rash: A few days to a month before you have other symptoms, a small, red bump may appear at the site of the tick bite. Over the next few days, the redness expands, forming a rash in a bull’s-eye pattern, with a red outer ring surrounding a clear area. The rash, called erythema migrans, is one of the hallmarks of Lyme disease. Some people develop several of these rashes, an indication of bacteria multiplying in the blood stream.
Flu-like symptoms: Fever, chills, fatigue, body aches and a headache may accompany the rash.
Migratory joint pain: If the infection is not treated, you may develop bouts of severe joint pain and swelling several weeks to months after you’re infected. Your knees are especially likely to be affected, but the pain can shift from one joint to another.
Neurological problem: In some cases, inflammation of the membranes surrounding your brain (meningitis), temporary paralysis of one side of your face (Bell’s palsy), numbness or weakness in your limbs, and impaired muscle movement may occur weeks, months or even years after an untreated infection.
Less common signs and symptoms: Some people may experience heart problems — such as an irregular heartbeat — several weeks after infection, but this rarely lasts more than a few days or weeks. Eye inflammation, hepatitis and severe fatigue are possible as well.
When to see a doctor
If you know you’ve been bitten and experience signs and symptoms of Lyme disease — particularly if you live in an area where Lyme disease is prevalent — contact your doctor immediately. Treatment for Lyme disease is most effective if begun early. Only a minority of deer tick bites leads to Lyme disease. The longer the tick remains attached to your skin, the greater your risk of getting the disease.
~ Health Boards… Message boards, forums, stories, etc…
~ CDC … Jul 26, 2012 – Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks; laboratory testing is helpful if used correctly and performed with validated methods…
~ Wikipedia … Lyme disease can affect multiple body systems and produce a range of symptoms. Not all patients with Lyme disease will have all symptoms, and many of the symptoms are not specific to Lyme disease, but can occur with other diseases as well. The incubation period from infection to the onset of symptoms is usually one to two weeks, but can be much shorter (days), or much longer (months to years). Symptoms most often occur from May through September…
Spirochetes that cause Lyme Disease – YouTube
~ YouTube … Sep 16, 2006 – 24 sec – Uploaded by LymeDiseaseData
Video of spirochetes. The Lyme Disease Research …
lyme disease
Searches related to lyme disease spirochetes
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identification and characterization of lyme disease spirochetes
taxonomy of the lyme disease spirochetes
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isolation and cultivation of lyme disease spirochetes

August 28, 2012

Top 100+ Misdiagnosed Diseases

Posted in MISDIAGNOSED tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , at 7:59 pm by PCOSLady

PCOS Lady:
I have a real issue with doctors and medical personnel today…
Most lack common sense, the right training, the dedication for caring, the thirst to know, the desire in caring people get well!
Doctors take an oath to 1st do no harm then to prevent disease where they can… The oath has been changed three times over the years, seems to their benefit… But 1st do no harm is still listed!
Doctors: (most doctors)
~ not being properly tested on the human body functioning as a whole…
~ not completing their internships…
~ not treating the cause just caring to treat symptoms… (new symptom = another drug, etc…)
~ not looking outside the listed treatments for new and alternative ways…
Drug companies know there will be more over medication, misdiagnosed, not diagnosed and malpractice going on due to doctors not completing their internships cause of demand today!
~ Malpractice attorneys are real busy and winning today!
~ Those firms are seeking physicians and physician assistants to be expert witnesses, etc… (Current and retired)
All your symptoms count… your medical history counts! Having a doctor that knows and actually cares are crucial in getting a proper diagnosis… “YOU” have the right to a second opinion! Your insurance should cover this for you…
Many doctors today are not considering all your symptoms!
~ Write your symptoms down…
~ Keep track of when they start, how long, what happens, what triggered them, etc…
~ RESEARCH your symptoms online… Sites, blogs, forums, research documents, etc…
~ Educate yourself on your medical issue(s) and condition(s)…
There are numerous medical conditions that are known to be overlooked in diagnosis, misdiagnosed as another disease, or diagnosed too often.
~ ADHD in Adults
~ Hypertension (High blood pressure)
~ High cholesterol
~ Diabetes
~ Asthma
~ Allergies
~ Emphysema
~ Lung cancer
~ Breast cancer
~ Colon cancer
~ Bipolar disorder
~ Depression
~ Crohn’s Disease
~ Ulcerative colitis
~ Inflammatory bowel disease (IBD)
~ Irritable bowel disease (IBS)
~ Celiac disease
~ Metabolic syndrome
~ Heart disease
~ Heart attack
~ Chronic pain syndromes
~ Fibromyalgia
~ Barrett’s esophagitis
~ Rheumatoid arthritis
~ Lupus
~ Lyme Disease
~ Chronic Fatigue Syndrome
~ Whooping Cough (Pertussis)
~ Von Willebrand’s disease
~ Hemochromatosis
~ Wilson’s disease
~ Mycoplasma
~ Appendicitis
~ Type 1 Diabetes
~ Pancreatitis
~ Gallstones
~ Sinusitis
~ Ankylosing spondylitis
~ Thyroid disorders
~ Hypothyroidism
~ Hyperthyroidism
~ Graves disease
~ Hashimoto’s thyroiditis
~ Adenoiditis
~ Psoriasis
~ Eczema
~ Cirrhosis of the liver
~ Hepatitis
~ Heart failure
~ Arrhythmias
~ Prostate cancer
~ Benign prostate enlargement
~ Ovarian cancer
~ Inflammatory breast cancer
~ Overactive bladder syndrome
~ Interstitial cystitis
~ Gestational hypertension
~ Eclampsia and Pre-eclampsia
~ Alzheimer’s disease
~ Impaired Glucose Tolerance (IGT)
~ Myelodysplastic syndromes (pre-leukemia)
~ Lactose intolerance
~ Anemia
~ Melanoma
~ Metabolic syndrome
~ Obstructive sleep apnea
~ Parkinson’s disease
~ Migraine
~ Osteoporosis
~ Chlamydia
~ Hypoglycemia
~ Reactive hypoglycemia
~ Glaucoma
~ Pelvic inflammatory disease (PID)
~ Chronic bronchitis
~ Toxoplasmosis
~ Otosclerosis
~ Age-related macular degeneration
~ Aneurysm
~ Abdominal aortic aneurysm
~ Middle ear infection
~ Salmonella food poisoning
~ Cryptosporiosis
~ Peripheral Neuropathy
~ Menopause
~ Andropause
~ Rectal cancer
~ Acromegaly
~ Cushing’s syndrome
~ Addison’s disease
~ Carbon monoxide poisoning
~ Gonorrhea
~ Deep vein thrombosis
~ Pulmonary embolism
~ Meningitis
~ Meningococcal disease
~ Endocarditis
~ Hyperparathyroidism
~ Hypoparathyroidism
~ Diabetic gastroparesis
~ Diabetic diarrhea
~ Infectious diarrhea
~ Multiple sclerosis (MS)
~ Genital herpes
~ Chronic kidney disease
~ Narcolepsy
~ Brain tumor
~ Stroke
~ Long QT Syndrome
~ Epilepsy
~ Temporal lobe epilepsy
~ Muscular dystrophy
~ Mesothelioma
~ Autism
~ Asperger syndrome
~ Vitamin B12 deficiency
~ Prevent Disease … The 7 Most Prescribed Drugs In The World And Their Natural Counterparts …

June 27, 2012


Posted in LOCAH, MISDIAGNOSED tagged , , , , , , , , , , , , , at 9:23 pm by PCOSLady

LOCAH Misdiagnosed for PCOS
PCOS Lady: Copied as in post for your benefit… Doctor well adversed in PCOS was wrong… She tried another approach and it worked for LOCAH… Keep track of your symptoms, tests, etc… You know your body! Keep searching, questioning, etc… to get the right diagnosis and treatment(s)…
3 Fat Chicks on a Diet Weight Loss Community > Support Forum > Dieting with Obstacles > PCOS/Insulin Resistance Support > Adult Onset Congenital Adrenal Hyperplasia
View Full Version : Adult Onset Congenital Adrenal Hyperplasia …
Poster: Sassy….
Hi Ladies,
I just got done watching Mystery Diagnosis (, on the Discovery Health Channel. This lady had similar symptoms of PCOS: weight gain, insulin resistant, facial hair, brown spots, etc. She went to several drs, including endocrinologists and they all thought she had PCOS. Her mother read an article in Woman’s Day about PCOS and there was a dr listed, Dr. Katherine Sherif (, who is supposed to the best of the best for treatment of PCOS. So she went and the dr gave her medicine to help with her PCOS, only it didn’t work like she thought it would. It should have lowered her Testosterone level and it didn’t. So Dr. Sherif tried another drug that is used for ADULT ONSET CONGENITAL ADRENAL HYPERPLASIA and that lowered it and relieved her symptoms. I just wonder how many of us Cysters actually have ADULT ONSET CONGENITAL ADRENAL HYPERPLASIA and just have not been misdiagnosed???
Anyway, I just wanted to get some information out there so we are aware that there is another disease out there that has a lot of the same symptoms as PCOS.
Here is a bit of info about it:
Late Onset CongenitalAadrenal Hyperplasia (CAH):, or non-classic congenital adrenal hyperplasia, is a less severe form of CAH in which symptoms can vary widely and appear anywhere between infancy and late adolescence. Because the symptoms can be mild or be confused with the symptoms of other disorders, it may not be diagnosed until a person is well into adulthood, if it all. To make things even more confusing, symptoms can come and go throughout one’s life.
The basics behind late onset CAH: Because of an enzyme deficiency, cortisol production is limited, causing the adrenals to overcompensate and make too many androgens (e.g. testosterone, DHEA). If a child has precocious puberty symptoms, advanced bone growth, or extreme muscle development, he or she is more apt to get diagnosed. Fairly often, however, it goes undiagnosed. This is because the physical symptoms in males are not as obvious since higher testosterone causes less differences in men, and a lot of doctors don’t think to check for late onset CAH when a woman complains of acne, menstrual disorders, and excess hair growth, etc. Also, both sexes can suffer from anxiety or neurological disorders caused by the lack of enough cortisol (which deals with stress) and excess androgens. The most common cause of both CAH and late onset CAH is a 21-hydroxylase deficiency. However, these disorders can also be caused by a deficiency of 11 beta-hydroxylase, 17 alpha-hydroxylase, 3 beta-hydroxysteroid dehydrogenase, or 20-22 demolase.
See: // now
Another Site for:
Another Link about Dr. Sherif: … // DELETED

June 24, 2012

Hyperthyroidism vs Hypothyroidism Symptoms

Posted in ENDOCTRINE DISORDER, MISDIAGNOSED, RELATED: HORMONES tagged , , , , , , , , , , , , , , , , , , , , at 11:30 pm by PCOSLady


PCOS Lady:
Many PCOS ladies will also have a thyroid issue… I have posted the symptoms and info to help you tell the differences and be better informed…
Seeing an endocrinologist is your best choice of doctors. Your doctor may tell you your thyroid was fine after a TSH only. Some people see multiple doctors before being told they have a thyroid problem. You may be misdiagnosed with depression or Diabetes or not diagnosed with anything!
~ Keeping a list of your symptoms will help in getting diagnosed properly…
~ Be sure your doctor addresses all your concerns and symptoms…
Your symptoms will show you have a thyroid problem. You may be hyperthyroid or hypothyroidism. Absence of periods leans to Hashimoto’s hypothyroidism.
~ Mary Shomon, a patient advocate, to be a wonderful resource for thyroid information. She writes books and is the Thyroid Guide writer at…
Additional info found on : – symptom_list – symptom_list
Hyperthyroidism Symptoms:
~ Heart palpitations; accelerated heart rate
~ Chest pain
~ A feeling of being too warm all the time
~ Nervousness and trembling
~ Insomnia despite feeling exhausted
~ Breathlessness
~ Diarrhea and GI upset
~ Increased appetite
~ Light or absent menstrual periods, infertility
~ Weight loss
~ Muscle deterioration
~ Warm, moist skin
~ Hair loss
~ Bulging eyes, “spacy” gaze
~ Heightened anxiety, irritability, moodiness or depression
Hypothyroidism Symptoms:
~ severe fatigue, loss of energy
~ weight gain, difficulty losing weight
~ depression and depressed mood
~ joint and muscle pain, headaches
~ dry skin, brittle nails
~ brittle hair, itchy scalp, hair loss
~ irregular periods, PMS symptoms
~ breast milk formation
~ calcium metabolism difficulties
~ difficulty tolerating cold and lower body temperature
~ constipation
~ sleeping more than average
~ diminished sex drive
~ puffiness in face and extremities
~ hoarseness
~ bruising/clotting problems
~ elevated levels of LDL (the “bad” cholesterol) and heightened risk of heart disease
~ allergies that suddenly appear or get worse
~ persistent cold sores, boils, or breakouts
~ tingling sensation in wrists and hands that mimics carpal tunnel syndrome
~ memory loss, fuzzy thinking, difficulty following conversation or train of thought
~ slowness or slurring of speech
Different sources vary the symptoms lists. Keep in mind that, as with many medical disorders, you may only have a few of the symptoms. And just because you don’t have a hallmark symptom of a disorder doesn’t mean you don’t have it.
Many times basic and general tests will not reveal certain problems like thyroid disease, prediabetes. You may need to insist on more detailed, targeted tests, even if you feel you have an excellent doctor.
PCOS Lady:
I have PCOS with 28 mild symptoms… Dr Chang in California told me at first i did not have PCOS… I pushed the symptoms i had and quoted his words back at him on points… He agreed i had PCOS!
A short quiz found at site you can show your doctors… Use it as a general short guide…
This information will inform you and help you on your journey to a proper diagnosis…

April 26, 2012


Posted in FATIGUE, MISDIAGNOSED tagged , , , , , , , , , , , , , , , , , , , , at 12:37 am by PCOSLady

My friend’s accident happened right after his face felt funny in spots… Seconds later he passed out and crashed!
~ Ignoring your progressive symptoms…
~ Not writing all your symptoms down…
~ Your doctor not listening to ALL YOUR CONCERNS…
~ Your doctor not caring enough to refer you to a specialist…
~ ETC….
All missed, undiagnosed, misdiagnosed, etc… “stuff” can lead to this or fatality!
Sean ignored his progressive symptoms… His MD said he had Post Prandial Fatigue… Sean & I kept searching to cover all his symptoms! After the accident his MD said “It’s to much work and testing” to look into his added symptoms… Sean gave him copies of his self diagnosis with his symptoms for Fatigue / Adrenal Fatigue / Hypopituitarism Pituitary Insufficiency checked off… His MD gave him a referral to an Endocrinologist! The Endo feels he has a pituitary gland problem!
!!!!!!!!!!!!!!!!!!!! SYMPTOMS COUNT !!!!!!!!!!!!!!!!!!!!!
Tests requested for a Pituitary Gland problem:

~ Ultrasensitive TSH
~ T4 Free
~ FSH Level
~ Urine Osmolality
~ IGF-1 Electrochemiluminesence
~ Cortisol Serum
~ Creatine
~ Electrolyte Panel
~ Prolactin Panel
~ Testosterone, Free
~ Testosterone, Serum
~ * Other Lab (CPT-)
You know your symptoms…
You know your body!

~ (deleted now)
Thanksgiving Morning Entrapment
Thursday, November 24, 2011

At 03:20, Companies 49 (Milmont), 43 (Holmes), and 62 (Vauclain) were dispatched to the 1000 block of Girard Ave for a reported vehicle into a pole. While en route, 70-7 confirmed they had two subjects heavily trapped and requested units to expedite. Upon arrival, Medic Ridley-7 requested the driver to be removed first. Crew from Rescue 43 popped the driver’s door and moved to the passenger’s side to begin the door pop on the that side. Upon arrival of Rescue 62, they were instructed by 43 Command to start roof removal along with the crew from Rescue 43. After roof removal was completed, EMS ascertained that the driver’s leg was entangled and the crew from 62 handled the driver’s removal.
43’s crew continued to work on the extrication of the passenger, who was heavily pinned due to the impact on the passengers side with a large tree. Crews from 43 popped the passengers door and made a third door in an attempt to gain better access to the victim. Due to the intrusion of the dash, firewall and rocker area, attempts were severely hindered. The tow truck was positioned to pull the vehicle from the tree for the crew to gain better access, but this proved unsuccessful due to a telephone pole and guide wire. 62’s crew utilized a ram from the center console area and 43’s crew utilized a spreader under the hinge area to gain enough room to safely disentangle the passenger’s legs.
All rescue operations were coordinated with Medic Ridley-7 and Ambulance 70. EMS was able to stabilize both victims throughout the extrication process and transport to a local trauma center. The Company was in service for approximately 1 hour and fifteen minutes to extricate both victims.
Car: ’94 Grand Am, 2 door…




March 25, 2012

Parasites in the US Not say US Doctors, WRONG!

Posted in MISDIAGNOSED, PARASITES tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , at 1:18 am by PCOSLady

Parasites in the US Not, WRONG!
PCOS Lady:
Parasites are here in many forms manifesting over time in you, around you, etc… Have you noticed more viruses? Colds usually now have a virus attached with them! Many viruses are immune to antibiotics, the list goes on and on… Some medical conditions have doubled and tripled in a few years time like allergies and sinus infections…. Mentioned on The Doctors TV show recently (4/2012)…
“You” have to research your symptoms and find the condition(s) that meets most or all your symptoms… These are major reasons why!
FYI: US Doctors are not trained to treat parasites or yeast infections in any great detail… US Doctors are not trained to treat fungal or bacterial infections as well… You have to seek a tropical specialist for those…
~ A retired physician’s assistant who started out in bacterial research made me aware of this…
Read my Parasite Protocal post for the steps to take…
The owner of the Parasite Testing Lab told me this same thing about the US… His research on 100 US proved 32% had parasites… 100 European proved 20% had parasites…
Please read the segment from Huma Health about American doctors…
Plus read through their site, it’s highly informative…
Quoted from:
Huma Health
We live in a modern, clean, sanitary country – talking about parasites is UNHEARD OF. We Americans consider it to be a Third World problem. American doctors are not trained to recognize or treat parasite infections. American doctors who take a Parasitology course (the study of human parasites) are given information and stats from foreign countries, so these doctors perceive parasites as a problem not associated with the United States. In other words, it’s not talked about, not taught to the members of our medical community and is frankly ignored by most everyone.
~ Orthomolecular Medicine
~ Naturopathic
~ Homeopathic
~ Tropical (specialists ?)
~ Infectious Disease – IF experienced in parasite infections…
~ Health Line…
~ Exert: Heart Infection: Certain bacteria, viruses, and parasites can infect the heart, causing heart disease.
~ Carditis is caused by a bacteria infection in your heart… Heart surgery is done to get rid of it!
Parasites and dental infections are a couple causes of it…
~ Alternative Medicine Forum … Exploring health & wellbeing from a no-hype, self-empowered perspective. A wealth of information…
The sad fact is most insurance plans/companies do not cover natural remedies, etc…
– Makes me wonder about why not! OR is it a confirmation on making money off us? Keeping us sick, etc…
~ I asked my DO if my insurance would cover an all natural plan for PCOS… He abruptly said “NO they won’t”…
More parasite symptoms are redness on your hands arms to elbows and feet to knees days… You may see white spots in the red as well plus may see just red dots that are deep then go light… Heart burn is another feeling you will experience!
Parasitic Infections Are Dramatically Rising
~ Morgellons ~ A Mundane Approach… Parasitic Infections Are Dramatically Rising … February 27, 2013…
~ Why would Americans have parasitic problems? Parasites are in every aspect of our environment including the food, soil and water we drink. They are found in every economic level but more so in poorer communities. There are 150,000 ( FACT:  250,000 “bad” parasites types, 50,000 are yeast types) different kinds of parasites. There are only a few that have standard tests to identify the infestation. The parasites are usually discovered during surgery when the failed organ is opened. The shocked surgeons find on examination, parasites infecting the tissue.
~ Who is most at risk for parasitic infections: All of us! It has been estimated that 90 percent of the North American population has at least one kind of worm in their intestine.

March 18, 2012

Misdiagnosed and Sites…

Posted in LINKS, MISDIAGNOSED tagged , , , , , , at 12:56 am by PCOSLady


PCOS is a highly misdiagnosed syndrome… Most doctors interpret PCOS in their own way… Hardly ever the right way!
Felt i should post these sites i found for a friend of mine….
Searched info on malpractice for a friend of mine… Found interesting information on it…
Man had passed out, was disoriented when the ambulance got to him… The hospital MD and psychiatrist deemed it a mental problem…
Truth was his Depakote level was 3 points over the legal limit for the body!
Another problem, that hospital took him off all drugs which put him in to severe withdrawl !!!!!
– The 1st hospital never checked the drug levels in his system…
– He had minor to medium type stroke symptoms a few days later… The next hospital straightened him out…
– He was not Diabetic, but had a Hypothyroid and has lost 60 lbs in a few months after… Plus, now has the heart of a 20 yr old, per his heart surgeon!
His MD diagnosed him as a Diabetic, injecting 100 units of insulin nightly for a year… No blood tests were ever taken for diabetes…
Fact: If not a Diabetic or given to much insulin your body will make you eat more even through the night to keep up with the insulin! A symptom not listed…
Common Misdiagnoses and Hashimoto’s encephalitis
Cluster of diseases with difficult diagnosis issues:
There is a well-known list of medical conditions that are all somewhat difficult to diagnose, and all can present in a variety of different severities. Diseases in this group include multiple sclerosis, lupus, Lyme disease, fibromyalgia, thyroid disorders (hypothyroidism or hyperthyroidism), chronic fatigue syndrome, diabetes – all of these can have vague symptoms in their early presentations. Also, depression can have some symptoms similar to these conditions, and also the reverse, that many of these conditions can mimic depression and be misdiagnosed as depression.
It’s malpractice if you ask:
“Was this diagnosis given after a thorough medical exam for underlying physical problems that could look like a mental one”
Thought you might like this collection of “KEY” sites on medical issues…
My point:
You have to keep a record of symptoms, drugs, etc… Have someone available that knows you quite well to back you up! Look up things online, in forums and groups, etc… KEEP notes on what doctors say, do, etc… It all pays for you in the end!
Even think about a medical advocate to speak for you and handle some medical things for you… I feel you need one if the doctor does not listen to you, etc…
– I witnessed my 65 yr old friend being ignored by his MD…
– 50+ yr olds may need to consider an advocate if they are being ignored or are kinda shy speaking up…
~ YOU know your body…
~ YOU are in control of your body!
* Part of a doctor’s oath “First do no harm…. “
A few other links i like are:
~ * Right Diagnosis … 100 misdiagnosed conditions! ~LOOK~

~ Right Diagnosis … Misdiagnosis of PCOS list…


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