June 27, 2012

LOCAH Not PCOS

Posted in LOCAH, MISDIAGNOSED tagged , , , , , , , , , , , , , at 9:23 pm by PCOSLady

LOCAH Misdiagnosed for PCOS
~
PCOS Lady: Copied as in post for your benefit… Doctor well adversed in PCOS was wrong… She tried another approach and it worked for LOCAH… Keep track of your symptoms, tests, etc… You know your body! Keep searching, questioning, etc… to get the right diagnosis and treatment(s)…
~
http://www.3fatchicks.com/forum/archive/t-119724.html
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3 Fat Chicks on a Diet Weight Loss Community > Support Forum > Dieting with Obstacles > PCOS/Insulin Resistance Support > Adult Onset Congenital Adrenal Hyperplasia
PDA
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View Full Version : Adult Onset Congenital Adrenal Hyperplasia … http://www.3fatchicks.com/forum/pcos-insulin-resistance-support/119724-adult-onset-congenital-adrenal-hyperplasia.html
~
Poster: Sassy….
08-05-2007
~
Hi Ladies,
~
I just got done watching Mystery Diagnosis (http://health.discovery.com/convergence/mystery-diagnosis/diseases.html), on the Discovery Health Channel. This lady had similar symptoms of PCOS: weight gain, insulin resistant, facial hair, brown spots, etc. She went to several drs, including endocrinologists and they all thought she had PCOS. Her mother read an article in Woman’s Day about PCOS and there was a dr listed, Dr. Katherine Sherif (http://www.healthgrades.com/directory_search/Physician/Profiles/dr-md-reports/Dr-Katherine-Sherif-MD-60ADFAE9.cfm?tv=PremierPhysicians_GetProfile), who is supposed to the best of the best for treatment of PCOS. So she went and the dr gave her medicine to help with her PCOS, only it didn’t work like she thought it would. It should have lowered her Testosterone level and it didn’t. So Dr. Sherif tried another drug that is used for ADULT ONSET CONGENITAL ADRENAL HYPERPLASIA and that lowered it and relieved her symptoms. I just wonder how many of us Cysters actually have ADULT ONSET CONGENITAL ADRENAL HYPERPLASIA and just have not been misdiagnosed???
~
Anyway, I just wanted to get some information out there so we are aware that there is another disease out there that has a lot of the same symptoms as PCOS.
~
Here is a bit of info about it:
~
Late Onset CongenitalAadrenal Hyperplasia (CAH):, or non-classic congenital adrenal hyperplasia, is a less severe form of CAH in which symptoms can vary widely and appear anywhere between infancy and late adolescence. Because the symptoms can be mild or be confused with the symptoms of other disorders, it may not be diagnosed until a person is well into adulthood, if it all. To make things even more confusing, symptoms can come and go throughout one’s life.
~
The basics behind late onset CAH: Because of an enzyme deficiency, cortisol production is limited, causing the adrenals to overcompensate and make too many androgens (e.g. testosterone, DHEA). If a child has precocious puberty symptoms, advanced bone growth, or extreme muscle development, he or she is more apt to get diagnosed. Fairly often, however, it goes undiagnosed. This is because the physical symptoms in males are not as obvious since higher testosterone causes less differences in men, and a lot of doctors don’t think to check for late onset CAH when a woman complains of acne, menstrual disorders, and excess hair growth, etc. Also, both sexes can suffer from anxiety or neurological disorders caused by the lack of enough cortisol (which deals with stress) and excess androgens. The most common cause of both CAH and late onset CAH is a 21-hydroxylase deficiency. However, these disorders can also be caused by a deficiency of 11 beta-hydroxylase, 17 alpha-hydroxylase, 3 beta-hydroxysteroid dehydrogenase, or 20-22 demolase.
~
See: http://www.cahsupportforum.com/locah.html // CafeMom.com now
See: http://www.endotext.org/pediatrics/pediatrics8a/pediatrics8a.htm
~
Another Site for:
ADULT ONSET CONGENITAL ADRENAL HYPERPLASIA
http://www.dundee.ac.uk/medther/tayendoweb/congenital_adrenal_hyperplasia.htm
~
Another Link about Dr. Sherif:
http://www.drexelmed.edu/About/NewsandAnnouncements/tabid/134/ctl/Details/mid/471/ItemID/78/Default.aspx … // DELETED

May 2, 2012

PCOS & LOCAH & THYROID Symptoms “only”

Posted in PCOS SYMPTOMS tagged , , , , , , , , , , , , , , , , , , , , , at 1:53 am by PCOSLady

SHORT SWEET AND PRECISE FOR YOU!


~
QUOTE:
“PCOS is not just a reproductive disorder; it’s a major health concern for women who are affected,” Dr. Nestler

~
PCOS & LOCAH & THYROID Symptoms
~
* Full list with tests, websites, info (follow blog links) *
~
This list of symptoms is beneficial for you to read over…
~ Some of you may have the symptoms or know a lady that does… My short listing…
~ A “quick” indicator is those of us that carry their extra weight in the tummy, abdomen and chin…
~ * Thin women can have PCOS &/or LOCAH, too…
~ Copy this and check off your symptoms, also keep a master copy and be sure to pass this on…
~
READ ON…
~
Symptoms for PCOS and LOCAH compiled from sites, forums, groups, research, 1st hand experiences, etc…
~
PCOS ~ Polycystic Ovary Syndrome
LOCAH ~ Late Onset Congenital Adrenal Hyperplasia
THYROID ~ Thyroid
~
SYMPTOMS ……… PCOS.~.LOCAH.~.THYROID.~. YOU__
———————————————————-
…………….. PX = PCOS ~ LX = LOCAH ~ TX = THYROID

~
* Periods *
~ absent…………………….. PX ~ LX ~ __
~ irregular…………………. PX ~ LX ~ TX ~ __
~ heavy, clots-golf balls. PX ~ __
* Pregnancy *
~ infertility………………… PX ~ LX ~ __
~ trouble getting………… PX ~ LX ~ __
~ miscarriages…………… PX ~ LX ~ __
* Hair *
~ excessive…………………. PX ~ LX ~ __
~ thinning………………….. PX ~ LX ~ __
~ facial………………………. PX ~ LX ~ __
~ pubic – early……………………. LX ~ __
~ zebra line- chest to belly…. LX ~ __
~ oily hair………………….. PX ~ LX ~ __
~ hair on toes ……………. PX ~ __
* Weight *
~ obesity……………………. PX ~ LX ~ __
~ hard to lose…………….. PX ~ TX ~ __
~ gain easy………………… PX ~ TX ~ __
~ IR – Insulin Resistance.. PX ~ LX ~ __
~ Metabolic Syndrome.. PX ~ LX ~ __
~ fluid retention…………….LX ~ __
* Skin *
~ acne………………………… PX ~ LX ~ __
~ dark skin patches……. PX ~ __
(ex: nape of neck)
~ skin tags…………………. PX ~ __
~ jaundice (yellowish)………… LX ~ __
~ oily skin (excessive)… PX ~ LX ~ __
~ dry scalp…………………. PX ~ LX ~ __
~ Rosacea…………………… PX ~ __
* Cysts *
~ ovaries……………………. PX ~ __
~ liver tumors…………………….. LX ~ __
~ liver cancer…………………….. LX ~__
~ kidney tumors……………………. LX ~ __
* Diabetes *
~ Type II (2)………………. PX ~ LX ~ __
~ Gestational……………… PX ~ LX ~ __
* Cholesterol *
~ high………………………… PX ~ LX ~ __
~ high LDL…………………………. LX ~ __
~ low HDL………………………….. LX ~ __
* Triglycerides *
~ high………………………… PX ~ LX ~ __
* Blood Pressure *
~ high………………………… PX ~ LX ~ __
* Misc…. *
~ Hypertension………….. PX ~ LX ~__
~ Stress……………………… PX ~ LX ~ __
~ Anxiety…………………… PX ~ LX ~ __
~ Panic Attacks………………….. LX ~ __
~ Moodiness……………… PX ~ LX ~ TX ~ __
~ severely moody………………. LX ~ __
~ Heart Disease…………. PX ~ LX ~ __
~ Hormone Disorder…. PX ~ LX ~ __
~ Neurological stuff…………… LX ~ __
~ Depression……………… PX ~ LX ~ TX ~ __
~ Hyperinsulinemia…… PX ~ __
~ excess Androgens…………….. LX ~ __
~ Atherosclerosis………………… LX ~ __
~ Hormone Imbalances.. PX ~ LX ~ __
~ low sex drive………….. PX ~ LX ~ TX ~__
~ RLS-Restless Leg Syndrome.. PX ~ __
~ 21 Hydroxylase ~
…… ~ deficiency……………. LX ~ __
~ 17 OHPS ~
…… ~ high – over 30 NG/DL…… LX ~ __
~ Total Testosterone, NG/DL ~
…… ~ 59 is high, 40 is elevated…. LX ~ __
~ UTI – Urinary Tract Infection…… PX ~ __
~ enlarged clitoris…………….. LX ~ __
~ deepened voice……….. PX ~ LX ~ __
~ Endometrial Cancer.. PX ~ LX ~ __
~ Endometrial Hyperplasia… LX ~ __
~ Sleep Apnea……………. PX ~ LX ~ __
~ Iron low…………………. PX ~ LX ~ __
~ Calcium low…………… PX ~ LX ~ __
~ low B12………………….. PX ~ LX ~ __
~ Ferritin level low……. PX ~ LX ~ __
…….. ~ *add iron if under 100-150
* Menopausal *
~ estrogen loss…………… PX ~ lX ~ __
~ hot flashes…………….. PX ~ __
~ skin thinning…………… PX ~ __
~ elevated sensitivity…….. PX ~ __
~ Cardio Disease………….. PX ~ __
~ effects on bladder ~
~ negative……………….. PX ~ __
~ effects on vagina are ~
~ negative……………….. PX ~ __
~ reduction in bone density…. PX ~ __
~ Androgen levels high…….. PX ~ __
~ poor lipid levels……….. PX ~ __
~ Hormone Imbalances…. PX ~ LX ~__
~
Important info is found in research as well…
~ Join research sites for updates, etc…
~
Birth Control Pills lower all your hormones… If some are still high, you could have PCOS &/or LOCAH… (per a research facility manager)
~ Be off them a solid 2 months before being tested for PCOS!
~
2/98 Cosmopolitan Magazine

article on PCOS by Dr. John Nestler, MD, professor of Endocrinology in Virginia …
~
Diagnosing problems
– each woman may exhibit a different combination of symptoms or no symptoms at all, etc….
– Experts now believe to be at the root of PCOS, is an inability to respond properly to insulin followed by;
~
~ high Cholesterol
~ obesity
~ high blood pressure
~ risk of Diabetes
~ heart disease
~
*** If women have regular periods and normal levels of testosterone, they DO NOT have PCOS… Per Dr. Nestler…***
~
Ladies (PCOS, Syndrome O & X) and men (Syndrome X) you need to read my information…(from my blogs)
~ Check off the symptoms you have, copy them and show your doctors…
~ YOU will be saving your own life in time…
~
This is my personal crusade to enlighten, inform and educate everyone about PCOS, Syndrome O and Syndrome X and related conditions … I have created blogs to show you and arm you with all needed to get the proper diagnosis…
~ Realize, if not treated you will die an early death in your 40’s thru 60’s of heart disease or cancer…
~ These syndromes will educate you on your own body inside and out…
~
Please feel free to read more and contact me through my blogs … http://PCOSLady.wordpress.com/
~ A wealth of info on PCOS, related conditions and more….
or
http://PCOSLady.blogdrive.com/
~ My original blog with a wealth of info…
~
You have made a wise choice, to save ‘YOU” and be healthier and live a happier life!
You have begun your PCOS Lifelong Journey…
~
Sincerely, Christie
PCOS Lady ~ E-mail: PCOS.Christie@yahoo.com

April 16, 2012

CAH, LOCAH… (PCOS)

Posted in CAH n LOCAH tagged , , , , , , , , , , , at 1:13 am by PCOSLady

CAH, LOCAH, LOCAH & PCOS
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CAH and LOCAH are rarely mentioned but do exist and LOCAH can be misdiagnosed as PCOS… Many of the symptoms overlap PCOS, as seen in my Symptoms List for them (PCOS, LOCAH & Thyroid)… I felt i should include links for more information for you…
~
CAH – Congenital Adrenal Hyperplasia
LOCAH – Late Onset Congenital Adrenal Hyperplasia
~
CAH
~
www.caresfoundation.org/
http://www.caresfoundation.org/productcart/pc/support_US_cah.html
~ * Cares Foundation … United States, Support group leaders play a vital function in our community and forum… Non-classical/Late Onset CAH. Complete description of the mild form of CAH, Non Classical CAH (NCAH) or Late Onset CAH (LOCAH), which may cause symptoms at anytime …
~
http://www.congenitaladrenalhyperplasia.org/
~ Congenital Adrenal Hyperplasia Education and Support Network… An education and support network for people and families with Congenital Adrenal Hyperplasia. Includes important medical links, FAQ, Message Board and Archives… Plus support group events…
~
http://www.livingwithcah.com/
~ Living With CAH…
~
http://rarediseases.info.nih.gov/GARD/Disease.aspx?PageID=4&diseaseID=9592
~ Rare Diseases National Center …
~
http://www.cah.org.nz/
~ CAH Support Group of New Zealand … Research, links, newsletter, forum…
~
http://www.cah.org.au/v2/
~ CAH Support Group Australia … Education, stories, links, research, plus…
~
LOCAH
~
www.caresfoundation.org/
~ * Cares Foundation … United States, Support group leaders play a vital function in our community and forum… Dedicated, seeking to advance quality health care through support, advocacy, education and research… support group events… Non-classical/Late Onset CAH. Complete description of the mild form of CAH, Non Classical CAH (NCAH) or Late Onset CAH (LOCAH), which may cause symptoms at anytime …
~
LOCAH & PCOS
~
http://rarediseases.info.nih.gov/GARD/Condition/9592/QnA/22654/Lateonset_congenital_adrenal_hyperplasia.aspx

~ Rare Diseases National Center … LOCAH can be misdiagnosed as PCOS in some women.
~ Clue – Your meds for PCOS are not working…
~ FACT: People with LOCAH usually have high levels of 17-hydroxyprogesterone in their blood…
~
Google:
CAH
CAH support
CAH forums
CAH research
LOCAH
LOCAH support
LOCAH forums
LOCAH research
LOCAH PCOS

May 12, 2007

PCOS, LOCAH, THYROID Symptoms, Tests, Sites…

Posted in LOCAH, PCOS, PCOS SYMPTOMS tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , at 7:33 pm by PCOSLady

PCOS IS AMONGST MANY OF YOU!


~

PCOS

PCOS & LOCAH & THYROID Symptoms, Blood Tests Needed w/Websites
~

~
NOTICE: THIS PAGE IS BEING UPDATED – CHECK BACK PLEASE….
SORRY FOR INCONVENIENCES….
~
This list of symptoms and websites are beneficial for you to read over… Some of you may have the symptoms or know a lady that does…A quick indicator is those of us that carry their extra weight in the tummy, abdomen and chin… (Thin women can have PCOS &/or LOCAH, too)
~
Jewel, who is married to Ty Murray, the rodeo champion mentioned she has PCOS on The Revolution TV show April 10, 2012…
~
Copy this and check off your symptoms, also keep a master copy and be sure to pass this on…
~
READ ON
~

PCOS EFFECTS YOUR WHOLE FAMILY … PCOS IS HEREDITARY… PCOS CAN EFFECT MEN WITH SYNDROME X … PCOS CAN BREAK YOUR RELATIONSHIPS, MARRIAGES AND YOU IF NOT TREATED (properly as well)!


~
Symptoms for PCOS and LOCAH and THYROID compiled from sites, forums, groups, research, etc…
~
PCOS ~ LOCAH ~ THROID SYMPTOMS LIST
~ ~ ~
PCOS ~ Polycystic Ovary Syndrome
LOCAH ~ Late Onset Congenital Adrenal Hyperplasia
THYROID ~ Thyroid
~
SYMPTOMS …. PCOS.~.LOCAH.~.THYROID.~. YOU__
———————————————————
……. PX = PCOS ~ LX = LOCAH ~ TX = THYROID

~
* Periods *
~ absent …………….. PX ~ LX ~ __
~ irregular ………….. PX ~ LX ~ TX ~ __
~ heavy, clots-golf balls .. PX ~ __
* Pregnancy *
~ infertility ………… PX ~ LX ~ __
~ trouble getting …….. PX ~ LX ~ __
~ miscarriages ……….. PX ~ LX ~ __
* Hair *
~ excessive ………….. PX ~ LX ~ __
~ thinning …………… PX ~ LX ~ __
~ facial ………………PX ~ LX ~ __
~ pubic – early ………….. LX ~ __
~ zebra line- chest to belly . PX ~ LX ~ __
~ oily hair ………….. PX ~ LX ~ __
~ hair on toes ………. PX ~ __
* Weight *
~ obesity ……………. PX ~ LX ~ __
~ hard to lose ……….. PX ~ TX ~ __
~ gain easy ………….. PX ~ TX ~ __
~ IR – Insulin Resistance .. PX ~ LX ~ __
~ Metabolic Syndrome ….. PX ~ LX ~ __
~ fluid retention …………. LX ~ __
* Skin *
~ acne ………………. PX ~ LX ~ __
~ dark skin patches …… PX ~ __
(ex: nape of neck)
~ skin tags ………….. PX ~ __
~ jaundice (yellowish) …….. LX ~ __
~ oily skin (excessive) .. PX ~ LX ~ __
~ dry scalp ………….. PX ~ LX ~ __
~ Rosacea ……………. PX ~ __
* Cysts *
~ ovaries ……………. PX ~ __
~ liver tumors ……………. LX ~ __
~ liver cancer ……………. LX ~__
~ kidney tumors …………… LX ~ __
* Diabetes *
~ Type II (2) ………… PX ~ LX ~ __
~ Gestational ………… PX ~ LX ~ __
* Cholesterol *
~ high ………………. PX ~ LX ~ __
~ high LDL ……………….. LX ~ __
~ low HDL ………………… LX ~ __
* Triglycerides *
~ high ………………. PX ~ LX ~ __
* Blood Pressure *
~ high ……………… PX ~ LX ~ __
* Misc…. *
~ Hypertension ……….. PX ~ LX ~__
~ Stress …………….. PX ~ LX ~ __
~ Anxiety ……………. PX ~ LX ~ __
~ Panic Attacks …………… LX ~ __
~ Moodiness ………….. PX ~ LX ~ TX ~ __
~ severely moody ………….. LX ~ __
~ Heart Disease ………. PX ~ LX ~ __
~ Hormone Disorder ……. PX ~ LX ~ __
~ Neurological stuff ………. LX ~ __
~ Depression …………. PX ~ LX ~ TX ~ __
~ Hyperinsulinemia ……. PX ~ __
~ excess Androgens ………… LX ~ __
~ Atherosclerosis …………. LX ~ __
~ Hormone Imbalances ….. PX ~ LX ~ __
~ low sex drive ………. PX ~ LX ~ TX ~__
~ RLS-Restless Leg Syndrome .. PX ~ __
~ 21 Hydroxylase ~
…. ~ deficiency ………… LX ~ __
~ 17 OHPS ~
…. ~ high – over 30 NG/DL .. LX ~ __
~ Total Testosterone, NG/DL ~
…. ~ 59 is high, 40 is elevated .. LX ~ __
~ UTI – Urinary Tract Infection .. PX ~ __
~ enlarged clitoris ……….. LX ~ __
~ deepened voice ……… PX ~ LX ~ __
~ Endometrial Cancer ….. PX ~ LX ~ __
~ Endometrial Hyperplasia ….. LX ~ __
~ Sleep Apnea ………… PX ~ LX ~ __
~ Iron low …………… PX ~ LX ~ __
~ Calcium low ………… PX ~ LX ~ __
~ low B12 ……………. PX ~ LX ~ __
~ Ferritin level low ….. PX ~ LX ~ __
…… ~ *add iron if under 100-150
~
* Menopausal *
~ estrogen loss ………. PX ~ lX ~ __
~ hot flashes ………… PX ~ __
~ skin thinning ………. PX ~ __
~ elevated sensitivity … PX ~ __
~ Cardio Disease ……… PX ~ __
~ effects on bladder ~
~ negative …………… PX ~ __
~ effects on vagina are ~
~ negative …………….PX ~ __
~ reduction in bone density .. PX ~ __
~ Androgen levels high ….PX ~ __
~ poor lipid levels …… PX ~ __
~ Hormone Imbalance …… PX ~ LX ~__
~
Important info found in research as well…
~
Birth Control Pills lower all your hormones… If some are still high, you could have PCOS &/or LOCAH… (per a research facility mgr)
~
2/98 Cosmopolitan Magazine
article on PCOS  by Dr. John Nestler, MD, professor of Endocrinology in Virginia…

~
Diagnosing problems – each woman may exhibit a different combination of symptoms or no symptoms at all, etc….
~ Experts now believe to be at the root of PCOS, is an inability to respond properly to insulin followed by;
~ high Cholesterol
~ obesity
~ high blood pressure
~ risk of Diabetes
~ heart disease

~
*** If women have regular periods and normal levels of testosterone, they DO NOT have PCOS… Per Dr. Nestler…***
~
Research shows LOCAH can bring PCOS on… Further research shows women will experience more or less symptoms of PCOS & LOCAH through their lives…
~
LOCAH & CAH SITES:
http://www.members4.boardhost.com/LOCAH/
– LOCAH forum for info and participating in…
~
http://www.endotext.org/pediatrics/pediatrics8a/pediatrics8a.htm
~ EndoText.com … Pediatrics Endocrinology … Lengthy explanation …
~
http://www.dundee.ac.uk/medther/tayendoweb/congenital_adrenal_hyperplasia.htm
~ NHS Tayside … Informative …
~
www.ahn.org.uk
~ Adrenal Hyperplasia Network
~
www.livingwithcah.com
~ CAH Support Group
~
www.caresfoundation.org
LOCAH: http://www.caresfoundation.org/productcart/pc/ncah_late_onset_cah.html
~ Care Foundation … Congenital Adrenal Hyperplasia Research Education & Support (CARES) Foundation – Dedicated to providing support to parents and patients affected by all …
~ Non-classical(NCAH) (also known as Late-Onset CAH)
~
PCOS SITES:
~
QUICK FAQ SHEET:
http://pcosfaq.com/
http://hub.webring.org/hub/pcossupportaware
~ Mary’s PCOS Treatment and FAQ’s… Highly informative what all she has found in research and her program…
~
http://pcosjournal.com/
~ PCOS Journal blog … I am a 29 year old female living in California. I have PCOS. I have been living with PCOS for the last 10 years, I have learned a lot about PCOS, but everyday brings something new…
~ Very informative …
~
www.soulcysters.com
Forum: * www.soulcysters.net *
~ PCOS women, information, forum, resources, etc… Worth joining! Happens to be the largest PCOS forum…
~
www.pcosupport.org
~ PCOS Association with research, information, resources, etc…
http://www.pcoscommunity.com/ … Formerly: http://www.pcolist.org
~ PCOS Association’s message board… 1st hand experiences… YOU join, be yourself, post questions and get honest answers, in return learning so much!
~
http://www.inciid.org/faq.php?cat=infertility101&id=2
–  International Council on Infertility Information Dissemination… Exceptionally informative site with a list of more sites…
~
www.ivf.com/ivffaq.html
www.ivf-et.com/tlc/fact_pcos.html
~ The Center for Applied Reproductive Science … Infertility and PCOS …
~
http://pcosinconnection.com/ … (Formerly … http://www.pcos.itgo.com)
~ PCOS Connection … PCOS Informational Center …
~
www.PCOSCoach.com
–  PCOS Coach – Infornation, newsletter, books and links…
~
http://wellnessmama.com/5425/balance-hormones/
~ Wellness Mama … “If you have symptoms like fatigue, skin issues, weight gain, weight around the middle, trouble sleeping, always sleeping, PMS, endometriosis, infertility, PCOS or other issues, chances are you have hormone imbalance!” This is extremely good info- love Wellness Mama
~
THYROID SITE:
~
http://thyroid.about.com/cs/hypothyroidism/a/checklist.htm
~ ~ About.com … Hypothyroidism Risk/Symptoms Checklist … Help in Diagnosis and Fine tuning Your Treatment …
~
ANDROGEN SITE
http://wwwthorne.com/townsend/mar/wns_update.html
– Info on Androgens and women’s health ( worth reading)
~
NOTES FROM RESEARCH:
PCOS is only in women at present… (research on men is going on)… But,
LOCAH effects women and men…

~
My advice to all women having any of these symptoms
~ Print this list out, check off your symptoms and show your doctor… NEVER take “NO” for an answer… Most likely he or she does not know about PCOS & LOCAH…  Or have very little knowledge of both…
~ Medical history, etc… plays a huge part in your diagnosis …
~ Push to see a Reproductive Endocrinologist familiar with PCOS & LOCAH…
       ~ Call Penn State University (PCOS research dept) for a referral…
…………….Phone #: 800.585.9585…
       ~ Call the Cedars Sinai PCOS Research Center for a referral…
…………….Phone #: 310.423.9964…

~
* Realize… PCOS & LOCAH are rare diseases/disorders…They are listed with
the Rare Disease website…
http://www.rarediseases.org
~
PCOS & LOCAH TESTS:
~
LOCAH
~ Along with symptoms
    ~ ACTH Test – it is a blood test… Be sure blood is drawn 3x’s!

~
PCOS ……………………… DONE/DATE
~ Along with symptoms:
…. ~ Ultrasound.(?)…………………. __/___________
…. ~ Total Testosterone……………….__/___________
…. ~ 17 OHPS……………………….. __/____________
…. ~ LH……………………………. __/____________
…. ~ Hormonal testing……………….. __/____________
…. ~ Calcium……………………….. __/_____________
…. ~ Iron………………………….. __/_____________
…. ~ Diabetes………………………. __/_____________
…. ~ Cholesterol……………………. __/_____________
…. ~ Triglycerides………………….. __/_____________
…. ~ Free Glucose…………………… __/_____________
…. ~ Insulin……………………….. __/_____________
…. ~ IL-6………………………….. __/_____________
~
* Your doctor may want more…
….. ~ PCOS – Thyroid Disorder and Cushings Disease need ruled out…

~
FYI:
* READ your test results !!!  Keep copies of all your tests, doctor visit notes/charts, etc…  You will see a pattern and be able to gain info and insight from forums on PCOS & LOCAH from it…
~
Test Results are explained here:
http://www.fertilityplus.org/faq/hormonelevels.html
– Fertility Plus Organization… Pregnancy tests are explained also…
~
http://www.labtestsonline.org/index.html
– Lab Tests Online…Public resource on clinical lab testing…
~
Conversion Table for Blood Glucose Monitoring:
~
http://www.joslin.org/info/conversion_table_for_blood_glucose_monitoring.html
~ Joslin Diabetes Center (Harvard Education)
~ Joslin Diabetes Center is the world’s largest diabetes research center, diabetes clinic, and provider of diabetes education… Now affiliated with Deborah Hospitals…
~
GUESS WHAT?
YOU end up having to educate your doctor(s)…. I quess the price paid for rare disorders, syndromes, etc…

~
I have personally gathered all this information and more for my own quest in being diagnosed with PCOS & LOCAH…
~ I hope the info will help you or someone you know…

~
FYI INFO:
~
* You do not have to have a polycystic ovary to be diagnosed with PCOS…
* Ultrasounds are not necessary in diagnosing PCOS…
* PCOS is diagnosed from you having one or more symptoms… This is due to PCOS being a syndrome…
* Syndrome O – now exists for women without cysts…
* Syndrome X – is the male version of our hormone imbalance…
~ This syndrome has been known of for years in men!
~ My hubby has most of the same symptoms, problems I do… (minus female things)

~
TESTS FOR PCOS:
 ~
PCOS – Polycystic Ovary Syndrome
The list of tests below are compiled from research, PCOS ladies and doctors…
* PCOS ladies have experienced needing these tests because their doctors do not know how much PCOS effects the body…

~
* Important:
~  For accurate results be BCP FREE for 2 solid months…
~  Rule out Cushings and Thyroid problems…

~
TESTS TO REQUEST:
~
CMP/Basic Metabolic Panel
Glucose^ ~ Urea Nitrogen (BUN) ~ Creatine ~ BUN/Creatine Ratio ~ Sodium ~ Potassium ~ Chloride ~ Carbon Dioxide ~ Calcium*….
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Lipid Panel
Triglycerides ~ Total Cholesterol ~ HDL Cholesterol ~ LDL Cholesterol ~ Chol/HDLC Ratio….
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Hepatic Function Panel
Total Protein ~ Albumin ~ Globulin ~ Albumin/Globulin Ratio ~ Total Bilirubin ~ Direct Bilirubin ~ Indirect Bilirubin ~ Alkaline Phosphate ~ AST ~ ALT ~ ALP….
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Insulin^ ~ T3 ~ T4 ~ TSH^ ~ 17 OHPS ~ 17 PO ~ DHEA-S^ ~ FSH^ ~ LH^ ~ Prolactin^ ~ Hypothyroidism^….
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Free Testosterone^ ~ Total Testosterone^ ~ SHBG^….
~ Iron* ~ Magnesium* ~ IL-6’* ~ Ferritin* ~ B12* ~ Estrogens ….
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* = tests you need to request…
^ = tests needed for a suspected hormone disorder…
‘  = * special test done to warn of 3 things PCOS (1st 3 listed) can lead to….
IL-6 is Interleukin – 6 ….I found this deep in heart disease research…
… ~ ( Heart Disease ~ Diabetes ~ Osteoporosis ~ frailty ~ certain cancers )

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Blood Tests Needed Before Prescribing Metformin/Glucophage:
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LH ~ FSH ~ E2 (Estradiol) ~ DHEA-S ~ T ~ 17 OHP ~ Prolactin ~ TSH ~ BUN ~ CR ~ AST ~ ALT ~ LDH ~ Glucose (fasting)….
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* “KEY” Blood Test – for losing weight:
~  Serum Insulin Level test… 
…. ~ If the level is 11 and under you will lose weight…
…. ~ IF level is 12 and above, guaranteed you will not lose weight…

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Ultrasounds To Have:
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Abdominal (regular one) and a TVS – TransVaginal
* These have not been deemed necessary to diagnose PCOS *

~ One lab i called that does ultrasounds said they are not always accurate…
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Lab Tests Can Be Interpreted Here:
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http://www.fertilityplus.org/faq/hormonelevels.html
– Fertility Plus Organization… Pregnancy tests are explained also….
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http://www.labtestsonline.org/index.html
– Lab Tests Online…Public resource on clinical lab testing…
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Drugs List:  (* LOOK here for good and adverse info)
www.Drugs.com
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PCOS Lady:
Ladies
This is a strong guide of tests you should have done at some point… Your doctor may take less or more, your insurance may not cover some… If your doctor requests more, ask WHY… If your insurance does not cover them, ask WHY and have your doctor explain why the need in writing to them…

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I hope this list further helps you in proper testing to give you a precise view of where you stand with your body in having PCOS… You are then able to know what needs done to make the wrongs right….
~  These tests sure showed me what’s what …

~
FYI:
~ YOU have to know about PCOS, i can’t stress it enough…
~ YOU have to know all the treatments available to you… Research and ask…
~ Treatment is a HIT & MISS scenario… No one cure for all!
~ YOU are in control with PCOS over your doctors…
~ FACT: 2004 the AACE http://www.aace.com made PCOS a priority to doctors…
~ Read it here: https://pcoslady.wordpress.com/category/aace/
~ PCOS is the most mis-diagnosed condition in women!
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REMEMBER:
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SYMPTOMS COUNT! ~ YOUR MEDICAL HISTORY COUNTS! ~ Know your symptoms ~ Know your treatments & options ~ “YOU” are in control of your body! ~ Knowledge is POWER!
~
Your life is at stake with PCOS, literally!
I wish you all well,
Christie
PCOS.Christie@Yahoo.com 
New Jersey

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My Original Blog:   http://PCOSLady.blogdrive.com/   … I have PCOS, FYI, Syndrome X, IR, home tests, etc… info there…
~

YOUR PCOS JOURNEY HAS BEGUN! … ~ … MAY YOU CONTINUE TO LEARN AND GAIN A WEALTH OF KNOWLEDGE ABOUT PCOS AND ” YOU “! … ~ … MAY THE POWER OF KNOWLEDGE BE YOUR DETERMINATION IN KNOWING THE RIGHT LIFESTYLE (treatments, diet, etc …) FOR YOU …