December 15, 2012

Gluten Intolerance

Posted in CELIAC DISEASE tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , at 5:26 pm by PCOSLady

GLUTEN INTOLERANCE
~
PCOS Lady:
Gluten Intolerance and Celiac Disease can be wicked to and in you… Three sets of symptoms are listed for you with the sites… The symptoms overlap other medical conditions… Headaches may be explained by being tested for one of these conditions…
~ I stress everyone be tested for Celiac Disease to know…
~
FACT: Most doctors can not draw a diagnosis from all your symptoms! They jump to diagnose you on a few only, hence a misdiagnosis!
FACT: Most doctors can not read your blood tests as a whole, only a few results they understand together…
~ I suggest you see an Endocrinologist, who specializes on internal chemistry, etc… (especially Diabetes)
~
SYMPTOMS COUNT! ~ All your symptoms… ~ Keep track of them… ~ It is your life!
~
Gluten Intolerance Symptoms – How Do You Know If Gluten Is Making You Sick?
~
* What are gluten intolerance symptoms?
* Are people with gluten intolerance just fussy eaters with a new excuse for their picky food habits?
~
Research shows that gluten sensitivity in some form, including celiac disease and mild gluten intolerance, affects approximately 15% of the US population. These statistics are likely to be similar in Western countries with similar health issues and dietary patterns.
~ Are you one of these people?
~ How do you recognize gluten intolerance symptoms?
~
First of all let’s * identify the difference between celiac disease and gluten intolerance. Celiac disease is an immune reaction, a severe sudden onset allergic reaction, to the protein called gluten. This is commonly found in grains such as wheat, rye, barley and oats. While celiac disease is initially an auto-immune disorder, it is also a disease of malabsorption, because essential nutrients are not absorbed. Therefore one of the most devastating symptoms of long-term undiagnosed celiac disease is malnutrition.
~
Gluten intolerance often has a slower onset than celiac disease, and may be hard to diagnose due to the broad range of symptoms and causes.
~
If you imagine a continuum of gluten intolerance symptoms, celiac disease is usually at the most extreme end with immediate autoimmune reactions. Some people with celiac disease may not have symptoms, but internally malabsorption and malnutrition can erode health over many years. Both celiac disease and gluten intolerance can be exacerbated by emotional stress, infection, surgery, pregnancy and childbirth. Every individual with some level of gluten intolerance or allergy may experience different shades of symptoms, hence the challenge for medical practitioners to diagnose.
~
So what are the specific symptoms of gluten intolerance and
celiac disease?

~
~ Weight loss or weight gain
~ Nutritional deficiencies due to malabsorption e.g. low iron levels
~ Gastro-intestinal problems (bloating, pain, gas, constipation, diarrhea)
~ Fat in the stools (due to poor digestion)
~ Aching joints
~ Depression
~ Eczema
~ Head aches
~ Exhaustion
~ Irritability and behavioural changes
~ Infertility, irregular menstrual cycle and miscarriage
~ Cramps, tingling and numbness
~ Slow infant and child growth
~ Decline in dental health
~
Undiagnosed for long periods of time, food intolerances have been found to contribute to diabetes, bowel cancer, anemia and osteoporosis.
~
Continue reading at site:
http://glutenfreenetwork.com/faqs/symptoms-treatments/gluten-intolerance-symptoms-how-do-you-know-if-gluten-is-making-you-sick/
https://www.facebook.com/GlutenFreeNetwork
~ Gluten Free Network … Info, symptoms, recipes…
~
Understanding Gluten-Free Special Diets
http://www.dummies.com/how-to/content/symptoms-of-gluten-sensitivity-and-celiac-disease.html
~ Dummies … Symptoms of Gluten Sensitivity and Celiac Disease … #4 of 7 in series segments …
Celiac disease and gluten sensitivity share some of the same symptoms. Although the actual damage occurs in the gastrointestinal tract, specifically in the small intestine, the symptoms manifest in many different ways and often show up throughout your entire body.
~
Gluten sensitivity and celiac disease have hundreds of symptoms; the following lists don’t contain them all, but are a good sampling:
~
* Gastrointestinal symptoms: These are some of the “classic” — although not the most common — symptoms of celiac disease:
~
~ Abdominal pain and distension
~ Acid reflux
~ Bloating
~ Constipation
~ Diarrhea
~ Gas and flatulence
~ Greasy, foul-smelling, floating stools
~ Nausea
~ Vomiting
~ Weight loss or weight gain
~
* Nongastrointestinal symptoms: Interestingly, although gluten sensitivity and celiac disease affect the gut, most people’s symptoms are not gastrointestinal in nature. This partial list includes just some of the more than 250 symptoms not centered in the digestive tract.
~
~ Fatigue and weakness (due to iron-deficiency anemia)
~ Vitamin and/or mineral deficiencies
~ Headaches (including migraines)
~ Joint/bone pain
~ Depression, irritability, listlessness, and mood disorders
~ “Fuzzy brain” or an inability to concentrate
~ Infertility
~ Abnormal menstrual cycles
~ Dental enamel deficiencies and irregularities
~ Seizures
~ Clumsiness (ataxia)
~ Nerve damage (peripheral neuropathy)
~ Respiratory problems
~ Canker sores (apthus ulcers)
~ Lactose intolerance
~ Eczema/psoriasis
~ Rosacea (a skin disorder)
~ Acne
~ Hashimoto’s disease, Sjögren’s syndrome, lupus erythematosus, and other autoimmune disorders
~ Early onset osteoporosis
~ Hair loss (alopecia)
~ Bruising easily
~ Low blood sugar (hypoglycemia)
~ Muscle cramping
~ Nosebleeds
~ Swelling and inflammation
~ Night blindness
~
SITES
~
http://www.webmd.com/digestive-disorders/celiac-disease/features/gluten-intolerance-against-grain
~ Web MD … What to know about celiac disease, gluten sensitivity, and gluten-free diets. … Lactose Intolerance Symptoms · Gluten-Free Recipes.
~
Gluten Sensitivity Symptoms
http://celiacdisease.about.com/od/glutenintolerance/a/Gluten-Sensitivity-Symptoms.htm
~ About’s Celiac Disease … Gluten Sensitivity Symptoms, forum, info, etc…
~
~
Why You Should Eliminate Wheat from Your Diet
http://www.kitchendaily.com/read/why-you-should-eliminate-wheat-your-diet?icid=maing-grid7|maing9|dl8|sec1_lnk2%26pLid%3D245778
~ Kitchen Daily … Why You Should Eliminate Wheat from Your Diet … Gluten, a protein composite of gliadin and glutenin found in wheat and grains, may be addictive. Perhaps this explains the uncontrollable cravings for carbs many of us experience. This news was hard for us to digest, but not nearly as hard as gluten is on our intestines.
~
Since the 1950s, when scientists began cross-breeding wheat to make it grow faster, we’ve seen a few issues arise. Wheat is not as healthy as it used to be. U.S. plant scientist, Norman Borlaug, who won the the Nobel Prize for his work in wheat hybridization may have introduced some compounds that aren’t exactly friendly to our bodies. In fact, there are proteins found in today’s wheat that scientists can’t trace back to the original plant.
~
What could this mean for you? Unfortunately, digestion issues along with a slew of potential diseases, such as celiac’s disease, rheumatoid arthritis, and IBS. These problems can pertain to anyone, not just to those with severe gluten reactions or celiac’s disease.
~
Wheat & Gluten Research: The Dark Side of Wheat
http://www.greenmedinfo.com/page/wheat-gluten-research
~ Green Med Info … Despite popular opinion wheat consumption may not be beneficial to health. These two published articles make a strong argument against perceiving wheat intolerance as simply a matter of allergy/genetic intolerance in a minority subset of the human population, but rather as a species-specific intolerance, applicable to all.
~
Journal of Gluten Sensitivity
www.celiac.com/glutenfreemall/journal-gluten-sensitivity-c-47.html
~ Celiac … Subscribe to Journal of Gluten Sensitivity.
~
Food Sensitivity Journal: The Case for Gluten Sensitivity Testing
http://www.foodsensitivityjournal.com/2010/11/case-for-gluten-sensitivity-testing.html
~ Food Sensitivity Journal … Nov 16, 2010 – There is widespread agreement that celiac disease and gluten sensitivity are under diagnosed. Joseph Murray, M.D., from the Mayo Clinic …Find gluten free recipes and interesting information…
~
~
http://www.immunitrition.com/
~ Immunitrition … A helpful resource to learn about cultured and fermented foods.
~
www.CulturedVegetables.net
http://www.culturedvegetables.net/main.sc
~ Immunitrition’s Online store
~
http://www.webstaurantstore.com/
~ The WEBstaurant Store … Restaurant equipment and supplies…
~
GOOGLE:
gluten intolerance
gluten free recipes
gluten allergy
celiac disease
rheumatoid arthritis gluten
IBS gluten
diabetes gluten
bowel cancer gluten
anemia gluten
osteoporosis gluten
Lactose intolerance
Journal of Gluten Sensitivity

April 12, 2012

Rosacea Cause Identified!

Posted in ROSACEA tagged , , , , , , , , , , , at 6:01 pm by PCOSLady

Cause of Rosacea Identified!
~
http://yourtotalhealth.ivillage.com/autoimmune-illness-news
~
http://yourtotalhealth.ivillage.com/researchers-identify-cause-rosacea.html
~
Researchers Identify Cause of Rosacea
~
August 7 (HealthDay News) — A combination of two abnormal factors cause the common inflammatory skin condition rosacea, a new U.S. study says.
~
Rosacea, a chronic condition that causes facial redness, affects about 14 million Americans. Triggers — such as heat, alcohol, spicy foods and embarrassment — that can worsen the condition are well known. But this is the first study to identify the actual cause of rosacea, the researchers said.
~
The researchers concluded that overproduction of two interactive inflammatory proteins leads to excessive levels of a third protein that causes rosacea symptoms.
~
“Too much SCTE (stratum corneum tryptic enzymes) and too much cathelicidin leads to the abnormal peptides that cause the symptoms of this disease,” team leader Dr. Richard L. Gallo, professor of medicine and chief of the division of dermatology at the University of California, San Diego School of Medicine, said in a prepared statement.
~
“Antibiotics tend to alleviate the symptoms of rosacea in patients, because some of them work to inhibit these enzymes. Our findings may modify the therapeutic approach to treating rosacea, since bacteria aren’t the right target,” said Gallo.
~
The study results were published in the Aug. 5 online edition of the journal Nature Medicine.
~
SOURCE: University of California, San Diego Health Sciences, news release, Aug. 5, 2007

March 27, 2012

4 Types of Rosacea (PCOS & Acne)

Posted in ROSACEA tagged , , , , , , , , , , , at 5:25 am by PCOSLady

The 4 Types of Rosacea
in “Understanding Rosacea”
~
Rosacea often begins with easy blushing and flushing of the facial skin. These symptoms may come and go at first. Eventually, redness persists around the nose, extending to the rest of the face. As rosacea progresses, additional facial symptoms such as burning, stinging, pimples, swelling, dry skin, enlarged blood vessels, and eye involvement may occur. These combinations of symptoms fall into the following four subtypes:
~
~ Subtype 1: Facial Redness (Erythematotelangietatic rosacea). Flushing and/or continuous facial redness occurs. Blood vessels are visible, especially around the nose.
~
~ Subtype 2: Bumps and pimples (Papulopustular rosacea). Pimples occur, and puslike lesions may be present, along with the facial redness. You may feel burning and stinging, and blood vessels on your face may be enlarged. This stage of rosacea is also known as acne rosacea.
~
~ Subtype 3: Enlargement of the nose (Phymatous rosacea). Your skin begins to thicken and develops an irregular texture. This thickening is most evident on the nose and can also occur on the ears, chin, cheeks, and forehead. You may have enlarged skin pores in addition to the large blood vessels.
~
~ Subtype 4: Eye irritation (Ocular rosacea). One or both eyes are affected in this subtype. They may be bloodshot, teary, itchy, dry, burning, or stinging, and you may have blurred or decreased vision. It’s common to feel as though you have a foreign body in the eye. This is a serious eye condition; you may need to see an ophthalmologist.
~
Symptoms of the first three subtypes may also be present on the neck, chest, ears, and scalp. Your health care provider can evaluate the subtype of rosacea you have. He or she will prescribe the treatment based on the subtype and additional information provided during an examination.
~
PCOS lady strongly suggests you look at the pictures at http://www.rosaceafacts.com/ site… You may have acne to severe rosacea…
~
Medical Reviewer: [Lee Jenkins, Sara Foster, RN, MPH], [Nelson, Gail MS, APRN, BC], [Sara Foster, RN, MPH] Copyright: © 2000-2010 The StayWell Company, 780 Township Line Road, Yardley, PA 19067. All rights reserved. This information is not intended as a substitute for professional medical care. Always follow your healthcare professional’s instructions.
~
Rosacea in relation to PCOS
~
http://www.hormonehelpny.com/question/hormone_060204.htm
~ Rosacea is partly testosterone-dependant so lowering and/or blocking testosterone can help. Topical metronidazole helps as well. Usually the combination works the best.
~ There is no evidence that progesterone cream helps and I do not recommend it.
~ Low testosterone does not aggravate rosacea but helps it.
~
Sites
~
http://conditions.aolhealth.com/rosacea/the-4-types-of-rosacea
~ AOL Health on Rosacea
~
Rosacea.org: The National Rosacea Society
~ Home of the National Rosacea Society. A website about the medical condition Rosacea. Features information for patients, physicians, newsletter, research grants, press …
rosacea.org
~
http://www.bing.com/health/article/mayo-MADS00308/Rosacea?q=rosacea&qpvt=Rosacea+Facts

~ Mayo Clinic – Rosacea — Comprehensive overview covers causes, symptoms and treatment of this inflammatory, adult skin disease.
~
www.rosaceafacts.com
~ If you think you have rosacea, it’s important to get medical care. Why? Because not only can this vascular, inflammatory condition get worse and potentially cause permanent damage to your skin, it has the ability to psychologically and emotionally impact your life. From avoiding social events to not feeling as self-confident as you once did, rosacea can affect life choices.
~
http://www.hormonehelpny.com/question/hormone_060204.htm
~ Hormone Center of New York
~
http://www.medscape.org/viewarticle/441986

~ Medscape…. Acne and Rosacea: Differential Diagnosis and Treatment in the Primary Care Setting
~ PCOS segment: http://www.medscape.org/viewarticle/441986_6
~
http://www.rosaceagroup.org/
~ Rosacea Group.org is a non-commercial site
http://rosaceagroup.org/The_Rosacea_Forum/
~
Google:
rosacea
rosacea facts
rosacea triggers
rosacea and PCOS
rosacea and adult acne
a red face could signal rosacea
the 4 types of rosacea
the hows and whys of rosacea

May 12, 2007

PCOS, LOCAH, THYROID Symptoms, Tests, Sites…

Posted in LOCAH, PCOS, PCOS SYMPTOMS tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , at 7:33 pm by PCOSLady

PCOS IS AMONGST MANY OF YOU!


~

PCOS

PCOS & LOCAH & THYROID Symptoms, Blood Tests Needed w/Websites
~

~
NOTICE: THIS PAGE IS BEING UPDATED – CHECK BACK PLEASE….
SORRY FOR INCONVENIENCES….
~
This list of symptoms and websites are beneficial for you to read over… Some of you may have the symptoms or know a lady that does…A quick indicator is those of us that carry their extra weight in the tummy, abdomen and chin… (Thin women can have PCOS &/or LOCAH, too)
~
Jewel, who is married to Ty Murray, the rodeo champion mentioned she has PCOS on The Revolution TV show April 10, 2012…
~
Copy this and check off your symptoms, also keep a master copy and be sure to pass this on…
~
READ ON
~

PCOS EFFECTS YOUR WHOLE FAMILY … PCOS IS HEREDITARY… PCOS CAN EFFECT MEN WITH SYNDROME X … PCOS CAN BREAK YOUR RELATIONSHIPS, MARRIAGES AND YOU IF NOT TREATED (properly as well)!


~
Symptoms for PCOS and LOCAH and THYROID compiled from sites, forums, groups, research, etc…
~
PCOS ~ LOCAH ~ THROID SYMPTOMS LIST
~ ~ ~
PCOS ~ Polycystic Ovary Syndrome
LOCAH ~ Late Onset Congenital Adrenal Hyperplasia
THYROID ~ Thyroid
~
SYMPTOMS …. PCOS.~.LOCAH.~.THYROID.~. YOU__
———————————————————
……. PX = PCOS ~ LX = LOCAH ~ TX = THYROID

~
* Periods *
~ absent …………….. PX ~ LX ~ __
~ irregular ………….. PX ~ LX ~ TX ~ __
~ heavy, clots-golf balls .. PX ~ __
* Pregnancy *
~ infertility ………… PX ~ LX ~ __
~ trouble getting …….. PX ~ LX ~ __
~ miscarriages ……….. PX ~ LX ~ __
* Hair *
~ excessive ………….. PX ~ LX ~ __
~ thinning …………… PX ~ LX ~ __
~ facial ………………PX ~ LX ~ __
~ pubic – early ………….. LX ~ __
~ zebra line- chest to belly . PX ~ LX ~ __
~ oily hair ………….. PX ~ LX ~ __
~ hair on toes ………. PX ~ __
* Weight *
~ obesity ……………. PX ~ LX ~ __
~ hard to lose ……….. PX ~ TX ~ __
~ gain easy ………….. PX ~ TX ~ __
~ IR – Insulin Resistance .. PX ~ LX ~ __
~ Metabolic Syndrome ….. PX ~ LX ~ __
~ fluid retention …………. LX ~ __
* Skin *
~ acne ………………. PX ~ LX ~ __
~ dark skin patches …… PX ~ __
(ex: nape of neck)
~ skin tags ………….. PX ~ __
~ jaundice (yellowish) …….. LX ~ __
~ oily skin (excessive) .. PX ~ LX ~ __
~ dry scalp ………….. PX ~ LX ~ __
~ Rosacea ……………. PX ~ __
* Cysts *
~ ovaries ……………. PX ~ __
~ liver tumors ……………. LX ~ __
~ liver cancer ……………. LX ~__
~ kidney tumors …………… LX ~ __
* Diabetes *
~ Type II (2) ………… PX ~ LX ~ __
~ Gestational ………… PX ~ LX ~ __
* Cholesterol *
~ high ………………. PX ~ LX ~ __
~ high LDL ……………….. LX ~ __
~ low HDL ………………… LX ~ __
* Triglycerides *
~ high ………………. PX ~ LX ~ __
* Blood Pressure *
~ high ……………… PX ~ LX ~ __
* Misc…. *
~ Hypertension ……….. PX ~ LX ~__
~ Stress …………….. PX ~ LX ~ __
~ Anxiety ……………. PX ~ LX ~ __
~ Panic Attacks …………… LX ~ __
~ Moodiness ………….. PX ~ LX ~ TX ~ __
~ severely moody ………….. LX ~ __
~ Heart Disease ………. PX ~ LX ~ __
~ Hormone Disorder ……. PX ~ LX ~ __
~ Neurological stuff ………. LX ~ __
~ Depression …………. PX ~ LX ~ TX ~ __
~ Hyperinsulinemia ……. PX ~ __
~ excess Androgens ………… LX ~ __
~ Atherosclerosis …………. LX ~ __
~ Hormone Imbalances ….. PX ~ LX ~ __
~ low sex drive ………. PX ~ LX ~ TX ~__
~ RLS-Restless Leg Syndrome .. PX ~ __
~ 21 Hydroxylase ~
…. ~ deficiency ………… LX ~ __
~ 17 OHPS ~
…. ~ high – over 30 NG/DL .. LX ~ __
~ Total Testosterone, NG/DL ~
…. ~ 59 is high, 40 is elevated .. LX ~ __
~ UTI – Urinary Tract Infection .. PX ~ __
~ enlarged clitoris ……….. LX ~ __
~ deepened voice ……… PX ~ LX ~ __
~ Endometrial Cancer ….. PX ~ LX ~ __
~ Endometrial Hyperplasia ….. LX ~ __
~ Sleep Apnea ………… PX ~ LX ~ __
~ Iron low …………… PX ~ LX ~ __
~ Calcium low ………… PX ~ LX ~ __
~ low B12 ……………. PX ~ LX ~ __
~ Ferritin level low ….. PX ~ LX ~ __
…… ~ *add iron if under 100-150
~
* Menopausal *
~ estrogen loss ………. PX ~ lX ~ __
~ hot flashes ………… PX ~ __
~ skin thinning ………. PX ~ __
~ elevated sensitivity … PX ~ __
~ Cardio Disease ……… PX ~ __
~ effects on bladder ~
~ negative …………… PX ~ __
~ effects on vagina are ~
~ negative …………….PX ~ __
~ reduction in bone density .. PX ~ __
~ Androgen levels high ….PX ~ __
~ poor lipid levels …… PX ~ __
~ Hormone Imbalance …… PX ~ LX ~__
~
Important info found in research as well…
~
Birth Control Pills lower all your hormones… If some are still high, you could have PCOS &/or LOCAH… (per a research facility mgr)
~
2/98 Cosmopolitan Magazine
article on PCOS  by Dr. John Nestler, MD, professor of Endocrinology in Virginia…

~
Diagnosing problems – each woman may exhibit a different combination of symptoms or no symptoms at all, etc….
~ Experts now believe to be at the root of PCOS, is an inability to respond properly to insulin followed by;
~ high Cholesterol
~ obesity
~ high blood pressure
~ risk of Diabetes
~ heart disease

~
*** If women have regular periods and normal levels of testosterone, they DO NOT have PCOS… Per Dr. Nestler…***
~
Research shows LOCAH can bring PCOS on… Further research shows women will experience more or less symptoms of PCOS & LOCAH through their lives…
~
LOCAH & CAH SITES:
http://www.members4.boardhost.com/LOCAH/
– LOCAH forum for info and participating in…
~
http://www.endotext.org/pediatrics/pediatrics8a/pediatrics8a.htm
~ EndoText.com … Pediatrics Endocrinology … Lengthy explanation …
~
http://www.dundee.ac.uk/medther/tayendoweb/congenital_adrenal_hyperplasia.htm
~ NHS Tayside … Informative …
~
www.ahn.org.uk
~ Adrenal Hyperplasia Network
~
www.livingwithcah.com
~ CAH Support Group
~
www.caresfoundation.org
LOCAH: http://www.caresfoundation.org/productcart/pc/ncah_late_onset_cah.html
~ Care Foundation … Congenital Adrenal Hyperplasia Research Education & Support (CARES) Foundation – Dedicated to providing support to parents and patients affected by all …
~ Non-classical(NCAH) (also known as Late-Onset CAH)
~
PCOS SITES:
~
QUICK FAQ SHEET:
http://pcosfaq.com/
http://hub.webring.org/hub/pcossupportaware
~ Mary’s PCOS Treatment and FAQ’s… Highly informative what all she has found in research and her program…
~
http://pcosjournal.com/
~ PCOS Journal blog … I am a 29 year old female living in California. I have PCOS. I have been living with PCOS for the last 10 years, I have learned a lot about PCOS, but everyday brings something new…
~ Very informative …
~
www.soulcysters.com
Forum: * www.soulcysters.net *
~ PCOS women, information, forum, resources, etc… Worth joining! Happens to be the largest PCOS forum…
~
www.pcosupport.org
~ PCOS Association with research, information, resources, etc…
http://www.pcoscommunity.com/ … Formerly: http://www.pcolist.org
~ PCOS Association’s message board… 1st hand experiences… YOU join, be yourself, post questions and get honest answers, in return learning so much!
~
http://www.inciid.org/faq.php?cat=infertility101&id=2
–  International Council on Infertility Information Dissemination… Exceptionally informative site with a list of more sites…
~
www.ivf.com/ivffaq.html
www.ivf-et.com/tlc/fact_pcos.html
~ The Center for Applied Reproductive Science … Infertility and PCOS …
~
http://pcosinconnection.com/ … (Formerly … http://www.pcos.itgo.com)
~ PCOS Connection … PCOS Informational Center …
~
www.PCOSCoach.com
–  PCOS Coach – Infornation, newsletter, books and links…
~
http://wellnessmama.com/5425/balance-hormones/
~ Wellness Mama … “If you have symptoms like fatigue, skin issues, weight gain, weight around the middle, trouble sleeping, always sleeping, PMS, endometriosis, infertility, PCOS or other issues, chances are you have hormone imbalance!” This is extremely good info- love Wellness Mama
~
THYROID SITE:
~
http://thyroid.about.com/cs/hypothyroidism/a/checklist.htm
~ ~ About.com … Hypothyroidism Risk/Symptoms Checklist … Help in Diagnosis and Fine tuning Your Treatment …
~
ANDROGEN SITE
http://wwwthorne.com/townsend/mar/wns_update.html
– Info on Androgens and women’s health ( worth reading)
~
NOTES FROM RESEARCH:
PCOS is only in women at present… (research on men is going on)… But,
LOCAH effects women and men…

~
My advice to all women having any of these symptoms
~ Print this list out, check off your symptoms and show your doctor… NEVER take “NO” for an answer… Most likely he or she does not know about PCOS & LOCAH…  Or have very little knowledge of both…
~ Medical history, etc… plays a huge part in your diagnosis …
~ Push to see a Reproductive Endocrinologist familiar with PCOS & LOCAH…
       ~ Call Penn State University (PCOS research dept) for a referral…
…………….Phone #: 800.585.9585…
       ~ Call the Cedars Sinai PCOS Research Center for a referral…
…………….Phone #: 310.423.9964…

~
* Realize… PCOS & LOCAH are rare diseases/disorders…They are listed with
the Rare Disease website…
http://www.rarediseases.org
~
PCOS & LOCAH TESTS:
~
LOCAH
~ Along with symptoms
    ~ ACTH Test – it is a blood test… Be sure blood is drawn 3x’s!

~
PCOS ……………………… DONE/DATE
~ Along with symptoms:
…. ~ Ultrasound.(?)…………………. __/___________
…. ~ Total Testosterone……………….__/___________
…. ~ 17 OHPS……………………….. __/____________
…. ~ LH……………………………. __/____________
…. ~ Hormonal testing……………….. __/____________
…. ~ Calcium……………………….. __/_____________
…. ~ Iron………………………….. __/_____________
…. ~ Diabetes………………………. __/_____________
…. ~ Cholesterol……………………. __/_____________
…. ~ Triglycerides………………….. __/_____________
…. ~ Free Glucose…………………… __/_____________
…. ~ Insulin……………………….. __/_____________
…. ~ IL-6………………………….. __/_____________
~
* Your doctor may want more…
….. ~ PCOS – Thyroid Disorder and Cushings Disease need ruled out…

~
FYI:
* READ your test results !!!  Keep copies of all your tests, doctor visit notes/charts, etc…  You will see a pattern and be able to gain info and insight from forums on PCOS & LOCAH from it…
~
Test Results are explained here:
http://www.fertilityplus.org/faq/hormonelevels.html
– Fertility Plus Organization… Pregnancy tests are explained also…
~
http://www.labtestsonline.org/index.html
– Lab Tests Online…Public resource on clinical lab testing…
~
Conversion Table for Blood Glucose Monitoring:
~
http://www.joslin.org/info/conversion_table_for_blood_glucose_monitoring.html
~ Joslin Diabetes Center (Harvard Education)
~ Joslin Diabetes Center is the world’s largest diabetes research center, diabetes clinic, and provider of diabetes education… Now affiliated with Deborah Hospitals…
~
GUESS WHAT?
YOU end up having to educate your doctor(s)…. I quess the price paid for rare disorders, syndromes, etc…

~
I have personally gathered all this information and more for my own quest in being diagnosed with PCOS & LOCAH…
~ I hope the info will help you or someone you know…

~
FYI INFO:
~
* You do not have to have a polycystic ovary to be diagnosed with PCOS…
* Ultrasounds are not necessary in diagnosing PCOS…
* PCOS is diagnosed from you having one or more symptoms… This is due to PCOS being a syndrome…
* Syndrome O – now exists for women without cysts…
* Syndrome X – is the male version of our hormone imbalance…
~ This syndrome has been known of for years in men!
~ My hubby has most of the same symptoms, problems I do… (minus female things)

~
TESTS FOR PCOS:
 ~
PCOS – Polycystic Ovary Syndrome
The list of tests below are compiled from research, PCOS ladies and doctors…
* PCOS ladies have experienced needing these tests because their doctors do not know how much PCOS effects the body…

~
* Important:
~  For accurate results be BCP FREE for 2 solid months…
~  Rule out Cushings and Thyroid problems…

~
TESTS TO REQUEST:
~
CMP/Basic Metabolic Panel
Glucose^ ~ Urea Nitrogen (BUN) ~ Creatine ~ BUN/Creatine Ratio ~ Sodium ~ Potassium ~ Chloride ~ Carbon Dioxide ~ Calcium*….
~
Lipid Panel
Triglycerides ~ Total Cholesterol ~ HDL Cholesterol ~ LDL Cholesterol ~ Chol/HDLC Ratio….
~
Hepatic Function Panel
Total Protein ~ Albumin ~ Globulin ~ Albumin/Globulin Ratio ~ Total Bilirubin ~ Direct Bilirubin ~ Indirect Bilirubin ~ Alkaline Phosphate ~ AST ~ ALT ~ ALP….
~
Insulin^ ~ T3 ~ T4 ~ TSH^ ~ 17 OHPS ~ 17 PO ~ DHEA-S^ ~ FSH^ ~ LH^ ~ Prolactin^ ~ Hypothyroidism^….
~
Free Testosterone^ ~ Total Testosterone^ ~ SHBG^….
~ Iron* ~ Magnesium* ~ IL-6’* ~ Ferritin* ~ B12* ~ Estrogens ….
~
* = tests you need to request…
^ = tests needed for a suspected hormone disorder…
‘  = * special test done to warn of 3 things PCOS (1st 3 listed) can lead to….
IL-6 is Interleukin – 6 ….I found this deep in heart disease research…
… ~ ( Heart Disease ~ Diabetes ~ Osteoporosis ~ frailty ~ certain cancers )

~
Blood Tests Needed Before Prescribing Metformin/Glucophage:
~
LH ~ FSH ~ E2 (Estradiol) ~ DHEA-S ~ T ~ 17 OHP ~ Prolactin ~ TSH ~ BUN ~ CR ~ AST ~ ALT ~ LDH ~ Glucose (fasting)….
~
* “KEY” Blood Test – for losing weight:
~  Serum Insulin Level test… 
…. ~ If the level is 11 and under you will lose weight…
…. ~ IF level is 12 and above, guaranteed you will not lose weight…

~
Ultrasounds To Have:
~
Abdominal (regular one) and a TVS – TransVaginal
* These have not been deemed necessary to diagnose PCOS *

~ One lab i called that does ultrasounds said they are not always accurate…
~
Lab Tests Can Be Interpreted Here:
~
http://www.fertilityplus.org/faq/hormonelevels.html
– Fertility Plus Organization… Pregnancy tests are explained also….
~
http://www.labtestsonline.org/index.html
– Lab Tests Online…Public resource on clinical lab testing…
~
Drugs List:  (* LOOK here for good and adverse info)
www.Drugs.com
~
PCOS Lady:
Ladies
This is a strong guide of tests you should have done at some point… Your doctor may take less or more, your insurance may not cover some… If your doctor requests more, ask WHY… If your insurance does not cover them, ask WHY and have your doctor explain why the need in writing to them…

~
I hope this list further helps you in proper testing to give you a precise view of where you stand with your body in having PCOS… You are then able to know what needs done to make the wrongs right….
~  These tests sure showed me what’s what …

~
FYI:
~ YOU have to know about PCOS, i can’t stress it enough…
~ YOU have to know all the treatments available to you… Research and ask…
~ Treatment is a HIT & MISS scenario… No one cure for all!
~ YOU are in control with PCOS over your doctors…
~ FACT: 2004 the AACE http://www.aace.com made PCOS a priority to doctors…
~ Read it here: https://pcoslady.wordpress.com/category/aace/
~ PCOS is the most mis-diagnosed condition in women!
~
REMEMBER:
~
SYMPTOMS COUNT! ~ YOUR MEDICAL HISTORY COUNTS! ~ Know your symptoms ~ Know your treatments & options ~ “YOU” are in control of your body! ~ Knowledge is POWER!
~
Your life is at stake with PCOS, literally!
I wish you all well,
Christie
PCOS.Christie@Yahoo.com 
New Jersey

~
My Original Blog:   http://PCOSLady.blogdrive.com/   … I have PCOS, FYI, Syndrome X, IR, home tests, etc… info there…
~

YOUR PCOS JOURNEY HAS BEGUN! … ~ … MAY YOU CONTINUE TO LEARN AND GAIN A WEALTH OF KNOWLEDGE ABOUT PCOS AND ” YOU “! … ~ … MAY THE POWER OF KNOWLEDGE BE YOUR DETERMINATION IN KNOWING THE RIGHT LIFESTYLE (treatments, diet, etc …) FOR YOU …